I’ve not been blogging, because of life. So, I know it’s a lame excuse, but with a two-year old son, nearly two-year old, an undiagnosed nerve condition, and a diagnosed chronic disease, I do what I have to do.
My nerve condition has been described as Ataxia, but whether it’s MSA, Parkinson’s, or a one-time occurrence, it’s a problem. It involves loss of balance, poor handwriting, and slurred speech. I will fight it, as I have fought Type 1 Diabetes for over twenty years, but I would be lying if I said it’s not serious. I have thought about more specialists, a specialized clinic, etc., etc. I have had to consider Disability, work-at-home occupations, and long-term unknown developments. I have been bitter, angry at God, even more grateful and greedy for life, and not wanting to waste a second of what I have.
No doubt T1D is tough and challenging, but compared to Ataxia, it is a simple solvable problem. So what do you do when a health issue is not so simple and solvable? Advice?
I wish I could give advice, but all I can give are ideas and comfort.
As if diabetes wasn’t enough, right?
Have you tried to search for online communities for people living with it? Just like the DOC, there has to be someone who can give you ideas. Is there a foundation or a research group that you can contact?
In any case, much love and hugs.